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Join to help improve living with OI!

OI (Osteogenesis Imperfect) is a genetic condition which affects the bones and soft tissue. People with OI have extremely fragile bones and  are dealing with a lot of pain, fatigue and other symptoms.

Help us raise money to fund for OI research. It’s easy and fun to do! Celebrate your birthday and ask your friends for a donation, organise a running event or participate in one! With this website we offer you the tools to start fundraising for OI.

Sign up in a few simple steps and help to enable research for OI!

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On March 10, 2019 the 45th edtion of the legendary NN CPC Run takes place again in The Hague. This run is attracting ca. 45.000 participants across various distances each year. Are you looking for a new running challenge? And are you willing to help out a worthy cause? Run for OI!  Why are we running for Osteogenesis Imperfecta (OI)? OI is a rare, genetic disease affecting the bone and connective tissue in the body. It is characterized by very fragile bones from birth. The cause of OI is a mutation in the genetic information, which is responsible for the production of collagen, which makes normal bones both solid and flexible. As a result, people with this disease often break their bones. In many cases first fractures happen during birth or sometimes even in the womb. During a lifetime, dozens of fractions occur, sometimes more than 200! Children are most fragile. With this run, we celebrate running by running for those who often can't. Your contributions to research for OI are much needed and incredibly much appreciated!  
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Start your own activity now to raise funds for research into OI. We are happy to help with any questions you may have!

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Greg

22-03-2019 | 00:04 To: Help me Spring into action for Care4Brittle Bones Sorry its late but better late than never Dad.....and no that's not a slow time :)