On our action platform you can easily create an action to raise money for Research for Osteogenesis Imperfecta (OI) and Research supporting activities supported by Care4BrittleBones and our Network partners.
There are many ways to use this site: You can use it to organize a sponsor run for many people, or ask for donations for a marathon OI. It can be used for birthday-related donations or for finding sponsors to enable participation in a scientific conference…It can also be used to raise funds targeted to specific research projects approved by our Advisory Boards during our annual Research Grant Proposal Round.

Everyone around the world is invited to join in and support our fight for a better quality of life for people with OI.

OI is a rare disease affecting the connective tissue and bones. It is a genetic disorder that is affecting people in very different ways – from light to very severe. The most common symptoms of OI are fragility of the bones (severe people with OI can experience more than 200 fractures in a lifetime) as well as pain and fatigue. Many people with OI around the world also experience fear of breaking again and social isolation, as “normal people” are afraid to harm them unintentionally. There are about 500.000 people with OI worldwide. Based on a conservative view they have on average 190.000 fractures each year. 520 each day. 21 every hour…Research is the only way to change this! Support Foundation Care4BrittleBones to support people with OI, their families and health care providers to have a better future!



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from € 10.000 (124%)
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On 28 June 2018 11 talented singers - all working for the same company - are singing in support of Foundation Care4BrittleBones and people with the rare bone disease of Osteogenesis Imperfecta (OI). All of them passed the auditions and were selected to be on stage with the extraordinary liveband of Daniel Kist (known from the Voice of Holland): * Caroline van der Schoot * Caterina Righini * Edelle Croghan * Jos Raateland * Lencola Sullivan-Verseveldt * Maria Thevis * Marina Feranchuk * Marjoke Heneweer * Patricia Herrera-Torres * Rob Staples * Sven Mundorf  (Note: This is not an official Shell-event. Everyone is participating on personal initiative). The evening will collect funds for Osteogenesis Imperfecta (OI) to establish a first worldwide data base for this rare bone disease which causes the bones to be extremely fragile and many more symptoms. Watch the story of Stijn (Dutch) or the story of Chedda (English) to find out more about OI.  The singer who raises most funds will receive a special award at the end of the event. Obviously the "real winner" is the charity. All donations go straight to the cause. Please donate to your favourite singer's campagne now! 
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Start your own activity now. If any questions, please contact dagmar.mekking@care4brittlebones.org

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24-07-2018 | 18:37 To: The Sound of ...Marjoke! Marjoke is a good friend