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Join to help improve living with OI!

OI (Osteogenesis Imperfect) is a genetic condition which affects the bones and soft tissue. People with OI have extremely fragile bones and  are dealing with a lot of pain, fatigue and other symptoms.

Help us raise money to fund for OI research. It’s easy and fun to do! Celebrate your birthday and ask your friends for a donation, organise a running event or participate in one! With this website we offer you the tools to start fundraising for OI.

Sign up in a few simple steps and help to enable research for OI!

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On September 20, the legendary Dam to Dam run takes place again. BUY YOUR TICKETS NOW AND TAKE PART IN THIS AMAZING EVENT. As every year, the most famous track of 10 EMs (about 16 km) from Amsterdam CS to Zaandam, a run through the IJ tunnel and along tens of thousands of enthusiastic spectators and many music bands. A big party every year! Care4BrittleBones will support a team of super-motivated runners who raise funds and awareness for research into the rare disease of OI. Why are we running for Osteogenesis Imperfecta (OI)? OI is a rare, genetic disease affecting the bone and connective tissue in the body. It is characterized by very fragile bones from birth. The cause of OI is a mutation in the genetic information, which is responsible for the production of collagen, which makes normal bones both solid and flexible. As a result, people with this disease often break their bones. In many cases first fractures happen during birth of even before. During a lifetime, dozens of fractions occur, sometimes more than 200! Children are most fragile. With this run, we celebrate running by running for those who most often can't. Your contributions to research for OI are much needed and incredibly much appreciated!
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€ 250

Anonymous

31-12-2019 | 15:03 Onderzoek en hulp is hard nodig!