WELCOME TO OUR ACTION PLATFORM FOR OI RESEARCH!

On our action platform you can easily create an action to raise money for Research for Osteogenesis Imperfecta (OI).
There are many ways to use this site: You can use it to organize a sponsor run for many people, or ask for donations for a marathon OI. It can be used for birthday-related donations or for finding sponsors to enable participation in a scientific conference.

Everyone around the world is invited to join in through this platform!  

OI is a rare disease affecting the connective tissue and bones. It is a genetic disorder that is affecting people in very different ways – from light to very severe. The most common symptoms of OI are fragility of the bones (severe people with OI can experience more than 200 fractures in a lifetime) as well as pain and fatigue. Many people with OI around the world also experience fear of breaking again and social isolation, as “normal people” are afraid to harm them unintentionally. There are about 500.000 people with OI worldwide. Based on a conservative view they have on average 190.000 fractures each year. 520 each day. 21 every hour…Research is the only way to change this! Support Foundation Care4BrittleBones to support people with OI, their families and health care providers to have a better future!

JOIN IN and HELP TO IMPROVE THE QUALITY OF LIFE OF PEOPLE WITH OI THROUGH RESEARCH!

 

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On September 23, the legendary Dam to Dam run takes On September 23, the legendary Dam to Dam run takes place again. As every year, it is sold out for the most famous track of 10 EMs (about 16 km) from Amsterdam CS to Zaandam, a run through the IJ tunnel and along tens of thousands of enthusiastic spectators and many music bands. A big party every year! Care4BrittleBones will run with 50 super-motivated runners who raise funds and awareness for research into the rare disease of OI. Why are we running for Osteogenesis Imperfecta (OI)? OI is a rare, genetic disease affecting the bone and connective tissue in the body. It is characterized by very fragile bones from birth. The cause of OI is a mutation in the genetic information, which is responsible for the production of collagen, which makes normal bones both solid and flexible. As a result, people with this disease often break their bones. In many cases first fractures happen during birth of even before. During a lifetime, dozens of fractions occur, sometimes more than 200! Children are most fragile. With this run, we celebrate running by running for those who most often can't. Your contributions to research for OI are much needed and incredibly much appreciated!
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Start your own activity now to raise funds for research into OI. We are happy to help with any questions you may have!

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Rachel

24-12-2018 | 22:38 To: Ik ben Chedda en ik heb OI Ik steun mijn nicht J Chedda!