Contribute to Improving Quality of Life 4 OI

This is the fundraising page of Celine Disch
from € 350 (50%)

We have to continue to work on improving the quality of life for people with OI, and I would like to be part of this. With this fundraiser I ask you to make a small donation to support the Conference Quality of Life 4 OI.

Since June 2017 my Osteogenesis Imperfecta has been diagnosed genetically. Through my mother I came into contact with Dagmar (CEO Care4BrittleBones) and from that moment onwards I have been committed to the foundation. My passion and drive within my Talent Role have brought me to a place on the board, focused on communication. “I am honored to be part of the board of this great foundation. My goal within this position is to create awareness and try to make a difference for everyone with OI. ”

The conference is hosted by a unique coalition of the OI-organizations (OIFE and OIF) and medical professionals (ERN – BOND) coordinated by the Foundation Care4BrittleBones. It demonstrates the spirit of the Conference: bringing the best ideas, the deepest scientific insights and smartest innovation together to improve Quality of Life for OI.

Want to find out more about the conference? Go to this page: http://www.qualityoflife4oi.org

You can create your own personalized poster to draw attention to this fundraising page. After printing the poster you can hang it in a shop, a café window or a community bulletin board. Ask your family, friends, co-workers and neighbors to help and also put up a poster in their home, school or work place. Most people are willing to help but be sure to ask permission first.

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13-07-2019 | 13:40
05-07-2019 | 13:26
28-06-2019 | 07:48