Running for Brittle BonesThis is the fundraising page of Danelle Downer
I am joining my good friend Rebecca for the 2nd time in a 16km race to raise money and awareness for Brittle Bones, a rare disease her daughter Lucy has. There are many different types of Brittle Bone Disease, from the most severe, where babies can die within days of being born, to the lightest form, which Lucy has.
Here is Lucy on her 14th birthday last month.
Lucy does not let the disease stand in her way. She has had 25 breaks in her 14 years, and as much as her mom tries, there is absolutely no holding her down! She loves to cycle, run, jump on trampolines, rollerskate, play volleyball, push boys in the playground – most of which have led to fractures in the past, but she lives her life to the full. Rebecca says her ongoing positivity and energy is an inspiration and I can't wait to partipate in this run to help support her live her life in the fullest!
For Lucy, for everyone with Brittle Bone disease, please help me raise awareness and much needed funds to help improve the quality of their lives.
Thank you for your support!
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